Mesothelioma support and self-care can help people manage pain, cope emotionally, and adjust their lifestyle for a better quality of life.

Living with mesothelioma can bring many physical and emotional challenges, often requiring a combination of medical care, lifestyle adjustments, and consistent emotional support.

Knowing where to find support resources can make a big difference in managing daily life for those with mesothelioma.

In this article, we explore mesothelioma support options for people living with mesothelioma and their loved ones, including pain management, therapy, and community connections.

People with mesothelioma can get several support options to manage their condition and improve their quality of life. These include:

  • Medical and palliative care: Oncology specialists offer treatments like surgery, chemotherapy, and immunotherapy. Palliative care teams help manage symptoms such as pain and fatigue, improving their quality of life.
  • Counseling: Individual therapy helps people with cancer manage anxiety and stress. Family counseling supports caregivers and loved ones in coping with emotional challenges.
  • Financial and practical assistance: Nonprofits and insurance programs like Social Security Disability Insurance (SSDI) and Medicaid, along with social workers, can offer resources to help cover treatment costs. They also coordinate daily needs such as transportation and in-home care.
  • Social support and advocacy groups: These resources offer emotional support and practical information. They help build connections with others facing similar challenges. They also guide cancer patients on treatment options, financial aid, and coping strategies.

Support groups create a sense of community, allowing people with mesothelioma to connect with others experiencing similar challenges.

A 2024 research review found that professionally led support groups effectively reduce mood disturbances, distress, and pain in people with advanced or metastatic cancer.

Here are some resources to help you find a mesothelioma support group:

  • Local cancer centers and hospitals: Many hospitals and cancer centers offer mesothelioma or cancer-specific support groups, both in-person and virtual. Ask your doctor or check hospital websites for the availability of such groups.
  • Online communities: For people without access to in-person groups, platforms like Cancer Support Community, Mesothelioma Circle, and the Mesothelioma Applied Research Foundation provide virtual meetings and forums.
  • Patient advocacy organizations: Organizations such as the American Cancer Society and Mesothelioma Applied Research Foundation list support groups and offer additional resources for people living with mesothelioma.

Prioritizing self-care can help people living with mesothelioma manage both physical symptoms and emotional stress:

  • Physical care: Engage in gentle exercises, like walking or yoga, to improve mobility and reduce fatigue. Consider talking with a physical therapist who can help create a safe exercise plan.
  • Diet and nutrition: A balanced diet with fruits, vegetables, lean proteins, and whole grains can support immune function and maintain strength. Your doctor or a dietitian can assist with personalized meal planning.
  • Stress management: Techniques like deep breathing and meditation can help manage stress, improve mood, and reduce pain and fatigue.
  • Rest and sleep: A 2017 study found that sleep problems are common in people with cancer and are related to a higher risk of dying. Following a calming nighttime routine, using sleep aids, or talking with a healthcare professional can help improve the quality of your sleep.

Supporting a loved one with mesothelioma requires offering both emotional and practical help.

  • Listen and validate feelings: Encouraging your loved one to share their emotions without judgment. This can boost their mental health and well-being, creating a safe space for them to get relief from stress and feel less isolated.
  • Encourage self-care and empowerment: You can suggest activities encouraging independence, such as gentle exercise, journaling, or relaxation techniques. Research shows that autonomy improves emotional well-being in people with cancer.
  • Assist with daily activities: You can help with tasks like meal preparation, medical appointments, and errands. This support allows them to conserve energy for meaningful activities like family time or hobbies.
  • Provide social and peer support: Encouraging your loved one with cancer to join support groups or online communities. This will help them access resources, connect with others who understand their journey and can help them feel less isolated.
  • Stay informed about treatment options: Research treatment updates or clinical trials that may benefit your loved one with cancer. Offer to attend medical appointments with them for additional support.

Providing mesothelioma support for a loved one means offering emotional understanding and practical help. Listen without judgment, validate your loved one’s feelings, and assist with daily tasks to help them save energy for meaningful activities.

Staying informed about treatment options and connecting them with support groups or online communities can reduce feelings of isolation. Connect them with others who understand the mesothelioma journey.